Smile...

This has to be one of my favourite songs of all time. I especially love the Glee cast singing it. This is my motto. I'm going to smile, regardless of what our lives throw at me. I love my small family and the obstacles we're facing right now.

Smile, though your heart is aching
Smile, even though it's breaking
When there are clouds in the sky
You'll get by...

If you smile
With your fear and sorrow
Smile and maybe tomorrow
You'll find that life is still worthwhile
If you just...

Light up your face with gladness
Hide every trace of sadness
Although a tear may be ever so near
That's the time you must keep on trying
Smile, what's the use of crying
You'll find that life is still worthwhile
If you just...

Smile, though your heart is aching
Smile, even though it's breaking
When there are clouds in the sky
You'll get by...

If you smile
Through your fear and sorrow
Smile and maybe tomorrow
You'll find that life is still worthwhile
If you just smile...

That's the time you must keep on trying
Smile, what's the use of crying
You'll find that life is still worthwhile
If you just smile

the saga of...

...the $15,000 hot tub continues. Don't recall? Well, apparently I'm good at venting, so here it goes. Check out THIS post and THIS post.

So, this mother writes me today. Now, I should have warned her, look I'm not in the mood for bullshit because my kid is STILL sick and doesn't seem to be getting better (oh yeah, I forgot to tell ya that one too. We ended up taking Jillian BACK to Sick Kids on Monday. Yeah, pneumonia in her lower right lung. She's awesome. :p), Lauren's got a cold and everyone is demanding Mommy time. Mommy is stretched thin. I haven't been to bed before 4 in the last few days and even then, I'm not sleeping well because of the circus that occurs in my room. Soooooooo anyway. This woman writes me today. Tells me that one of the other triplets has a CP diagnosis. Wow, shitty for you. what can I say? She refuses to do PT work because she doesn't want to hurt them. Now, I hate huring my kids too, but, I realize it's for the greater good for Jillian. Like walking. I'd really like to see her walking some day. But, I'm just silly.

So, she FB chats with me today and I tell her that I was sorry to hear about her other kids diagnosis. And I AM. But, all of this started yesterday when I had asked if her other child had been given a sedated MRI or CT scan to CONFIRM CP diagnosis. Apparently not. So, she wrote on 2 CP boards that I'm a member of on FB. Fine. 8 people responded and said "yes, they need the MRI or CT to confirm" uh, yeah. TOLD. YA. SO. but, no. I'm a bigger person. I didn't say that. So, she begins saying that he couldn't have it done because of chronic lung disease, 7 out of the 8 people said that their kids had Chronic lung disease too but still had the tests done. And you know what? I think it's pretty LUCKY that we live in Toronto (or in her case just outside of Toronto) where we have access to the biggest/best children's hospital in CANADA. But, whatever. I digress.

Today's fight was her telling me how awesome her children are doing. I started just agreeing with her and then I lost it. You know what? Other families are dealing with more than you. Like will Jillian ever walk? I'm HAPPY for your kid, but you need to understand that I'm going through some shit too. So I then asked her if she had family and friends in this province. She said "Of course" well, HOORAY FOR YOU! I don't. Well, barely. I'm just so done being supportive of everyone else when I get nothing in return.

Yes. I research. I take PRIDE in the fact that I research. It helps me feel like I'm being proactive for my kid. You don't want to research? Fine. but don't ask me to do it for you. And you know what else? I'm not asking MY therapists questions for YOU. find a better family doctor or whatever. I don't really care.

Seriously though? what is WRONG with me? I never tell people off. I even felt guilty and thought about writing her and appologizing. When did I become so cranky? My friend Melissa said that this is a HUGE part of our lives and when someone is being douchey, I need to stand up for myself AND Jillian. I'm just so tired. I hate how I'm becoming. I need a vacation. :(

Overheard...

So, since Jillian has spent so much time in hospitals and appointments, I've heard some pretty hilarious stuff, this might be a regular kind of post that I do! Depends on how much I hear! ;) Not to mention, I'm a pretty good eavesdropper (Right Meg?!)

Btw. Thank you everyone for all of your support on my last post. It really means a lot to me. Another BTW. I'm getting a new blog and a new home. I can't say thank you enough to Lisa from Garden of Many and Stef from Mommys Quiet Time

Now, onto the fun.

When Jillian was first born, I overheard a lot in the NICU. There is one situation that I overheard. There were a homeless couple with a child in the NICU. The father was creepy, the mother was strange and this was their FIFTH child that was going to be taken by CPS. Sad situation. Anyway, I was doing Kangaroo care with Jillian, so the common practice is to put a clean gown on so it does up in the front. I was only 3 days postpartum and the homeless man was there. He scanned me up and down and said "WOW! Looking HOT!" disgusting.

*****

OH! I just remembered a GOOD ONE!! When I went into the hospital when I was pregnant with Jillian, I was in triage to see is my water had broken. This other woman stumbled in and they started asking the routine questions. She had thought her water had broken. So, they were almost done taking her history and she piped up with a question "I went swimming yesterday. did that cause it?!" Uh, dude. If you're going to be someones MOTHER, you might want to look into things.

*****

When I was in the ER for my broken ankle (this past summer) there was a man in the curtained area beside me. His complaint was swollen testicles, which he said rather loudly. The nurse then asked him to remove his pants so she could see the affected area. He refused to pull his pants down. He just wanted them to take his word on it. Strange man.

*****

When I went to Jillian's AFO fitting on Friday, there was a woman there with her child. Now, Maureen the one who does a lot of the AFO work, plus works for a neonatal followup clinic in that hospital. She's VERY well known about preemies. I had seen the child and thought "Hmmm... That child doesn't look quite RIGHT, but I can't put my finger on it." I'm not saying anything about special needs, OBVIOUSLY since Jillian IS special needs! (I need to tell you that Maureen is VERY blunt and to the point- which works for me. I don't want people dancing around things with me) so, Maureen proceeds to ask the mother if the child has any medical conditions. Mother replies "NO" and Maureen then asked "was she diagnosed with anything" mother replies "Fetal Alcohol Syndrome" Now, Maureen says "So, she has FAS" the mother said "Only when she was born" Maureen then pretty much looses her shit and says "FAS IS A LIFE LONG CONDITION! IT DOESN'T JUST GO AWAY!" phew... She didn't need to talk to that mom like that, but, I'm quite glad she wasn't aiming that anger at me!

Stay tuned for another episode of Overheard. Coming to a blog near you soon. ;)

It sucked...

...And then I cried. Too bad Dooce already wrote a book and stole that title. Damn that Dooce. (Btw. Not that I EVER think that Dooce would ever read a lowly little blog like mine, but HEY, DOOCE!!! Waves WILDLY! Call me! I need money! ;))
So yeah. Back to business. Today sucked. Seriously. I had been dreading it. For weeks. And today? It happened. We went to get Jillian's AFO's

Lauren cried. Begging me to take them off because they were hurting Jillian. Apparently it's ok for her to kick her sister in the head, but no one else can hurt her.

I was fine. I talked to Melissa, I talked to Jen, I talked to Adam, I was FINE. Like, beyond fine. Almost no emotion about the whole thing (although with Melissa, I swore a lot... not an uncommon thing for me when I'm mad or any other day really...) Meg called and woah. Poor Meg. All I heard was "Hey, I think you need a hug" and I LOST IT. Like sobbing lost it. I don't even know why. I just miss her so much sometimes! Why did her boyfriend want to go to NOVA SCOTIA (Oh the irony) to become a doctor. We have doctors in Toronto, ask Jillian- she's got a whole team of them.

I just finished crying for the last 30 minutes. Usually Adam is so supportive. I know he's dealing with this in his own way, but he hasn't even hugged me since he's been home. We got Jillian fitted for her wheelchair too... I had thought we were going to get the KidKart, but to be honest with you, I liked the Kimba by Ottobach better. here's a picture. :p



So yes, my friends. I'm aware that "there is always someone worse off than you" and kids are dying and people are starving and HAITI happened, but man. This fucking sucks. So excuse me, while I go pour a nice bottle of Chablis or Pinot Grigio and call it a night.

An update.

So, I'm in the process of potty training Lauren- our newly minted 3 year old. :) She has come up with some really funny things lately. Here are some examples. We're using a sticker chart as a reward system at the moment. So yesterday, after having a relatively successful day peeing on the potty, this transpired:

Mom- "Lauren! Mommy is so proud of you! You peed on the potty! Will you pee on the potty tomorrow?"

Lauren- "No thanks, I got stickers today"

***

As Lauren is sitting completely bare bummed on my couch (yes. A part of me cringes.) Lauren is regarding her vagina. She says "MOM! My gina! It's still in there!" Uh, great Lauren, glad you found it.

***

Little does Adam know, he'll be asking to work from home after this conversation.
Lauren- "Daddy pick me up?"

Daddy- "Uh, ew, no, Lauren, you're not wearing a diaper or pants"
Lauren- "Ok, I no pee on potty. I need a diaper and pants to cuddle with Daddy"

Seriously Adam?! Way to discourage her!!!!

***

I'm MAJORLY nervous about Friday. Jillian gets her AFO's (ankle foot orthotics) and fitted for her wheelchair on Friday.

AFO (Jillian's will look like the ones on the left, hers will be purple with butterflies)


KidKart


My mother in law tried to sugar coat it. She said "It's just an assitive seating device" Um, right. I replied "Let's call it what it is, it's a wheelchair, the sooner we can accept that the better" Bitchy much, Cheryl? What is WRONG with me? I am SO lucky and glad that she's getting early intervention and equiptment she needs, but, man. This sucks.

Wordless Wednesday

Here are a couple pictures from Lauren's birthday party, we had temporarily lost our minds and we took her and some friends to Chuck E. Cheese.



Lauren looked scared and wasn't sure what was going on when they got her to stand up!



Lauren's awesome cake, that has a figurine of her and her favourite toy. :)

Not ready for Monday

Ugh. Please. Just shoot me. Lauren has decided she has to be right 100% of the time. Well, guess what? Kicking your sister in the head does not exempt you from that which is the time out chair. And guess what else? I'm not raising a terrible child, so you WILL appologize whether you like it or not. I don't want to be classified as one of THOSE parents (you know the type... The ones who let their children get away with murder). I want to raise a pleasant, happy member of society. Like, seriously. I raising a human here!

Stay tuned for some pictures of Lauren's birthday party. It was madness. Chaos if you will. And you know what? The parents were worse than the children! This woman came by and said "Can I get through here?!" By this time, I had been tired of not hearing an excuse me or something NICE to get through. So, I looked at her and said "I don't know, CAN YOU?" woah. Mega bitch Cheryl. You know what else someone had said to me? A GROWN MAN, trying to get through our little possy said "BEEP! BEEP!" um. Right. Are you 5!? Have some decency people.

Adam came over to me at one point and said "Parents AND Kids are assholes" yep. He went there. It was pretty hilarious especially since I was dealing with rude parents AND ass grabbers. What? You haven't never had your ass grabbed at Chuck E. cheese? Well let me tell you, I had my ass grabbed, pinched, slapped enough for everyone yesterday. Um, hi. I'm not cool with that. Please don't tap my butt to get me to move. SAY EXCUSE ME and you will be dealing with a much nicer Cheryl.

So, Lauren? you will NOT act like some of those children yesterday. Oh and you WILL NOT kick your sister in the head without saying you're sorry and having a nice time out. I feel that her time out chair will have a nice imprint of Lauren's behind. JUST WAIT until Jillian can fight back! Then I'm in for it!!!